Monthly Archives: February 2013

Camel.

My sincerest apologies for not having a picture. And because I don’t, I know that no one will believe me. But on our way home from Marion, on Sugar Hill Road between Old Fort and Marion, we saw a camel grazing in a field.

Seriously, just a camel eating grass like it was perfectly at home in Western North Carolina.

Sometimes life is just so fun 🙂

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Categories: Stories from My Life, Stress Relief | Tags: , , , | Leave a comment

Quite possibly the best meme EVER.

Quite possibly the best meme EVER.

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Since I’m up early anyway

I love this blogger – she’s just so honest!

The up early thing, I completely empathize with. Why don’t kids have snooze buttons? But I love how she’s taken that and turned it on its head. This is what life is all about.

Since I’m up early anyways.

Categories: Blog Reviews, Health | 1 Comment

A little Monday fun with The Miserables

Our family are HUGE Les Miserables fans. Seriously, we took our boys to see the movie in the theatre in December. Yes, that’s right, a four year old and a six year old for three hours in a movie theatre watching a musical based on a Victor Hugo novel. They were perfectly well behaved and wonderful, completely engrossed in the film. Jude only had to be taken to the bathroom twice and didn’t have an accident!

My husband and I are so enthralled with this musical, it never occurred to us that it might not be just a super happy experience to share with them. Of course we both forgot until we got into the movie that the show is called “the Miserables.” The boys seemed rather shell shocked coming out of the theatre. I mean (SPOILER ALERT), everyone dies.

However we are rather insistent parents, so we bought the soundtrack and insisted that we listen to it on loop for a six hour car trip shortly thereafter. Yeats is now obsessed with the music! He does yell at us if we start to sing “Master of the House,” as it’s about bad people. But the rest of our mad singing of these show tunes he rather seems to enjoy. He often asks to listen to it! Ah, another Victor Hugo fan in the family.

Once upon a time about a decade ago, I never missed the Oscars. Now I can’t remember the last time I watched. BUT I had heard that Les Mis was up for a bunch. So tonight I took a few minutes out of working on some schoolwork (Virgil decided to have a screaming contest with himself and utterly broke my focus) so I took a few minutes to see how the movie fared.

To my surprise they did a full cast performance during the Oscars! Of my husband’s favorite song no less. (My favorite song from the show is “I Dreamed a Dream,” his is “One Day More.”) So here’s the video of last nights performance. LOVE IT!! Yay!!

Les Miserables Oscars 2013 Performance by HughJackMania

Now back to my schoolwork. This assignment is due by midnight.

Categories: Stories from My Life, Stress Relief | Tags: , , , , , | Leave a comment

Friendship and the Special Needs Child

I’ve heard a lot of special needs parents talk about how their friendships are not able to survive the changes in their lives that come with having a special needs child. Friends who were once very close can’t cope with the stressors and don’t understand what life is like once you enter this dizzying world of doctors and hospitals, specialists and future which could include things that you as a parent are suddenly too terrified and dismayed at to even face in the daylight.  A lot of parents that I know in the special needs community say that its because they talk about their children too much, that friendships become strained because their lives are a series of difficult times that their friends are not able to support. It’s because of the burden that their friends aren’t willing or able to stick around.

It’s important that parents have those friendships. Studies show that a wide group of friends increases health and happiness. People who have a rich life of friendship live longer and are happier. Even for parents who’s children don’t have challenges, it can be difficult to maintain friendships as life gets more hectic.

I have come to a revelation about the issue as there has been some strife in my longtime friendships recently.

I am different now than when Hermione was just a twinkle. I am stronger. I am more convicted about my beliefs. I am more willing to voice them. I am a fighter, with a will of steel. I am able to make sacrifices and decisions that I would never have thought possible. I am also more patient and understanding. Rather than feeling a lack of control in my life, I see how much control we do have to shape our world. I don’t bemoan my life but I also don’t apologize for who I am. I have newfound confidence in myself.

These are all things that were inside of  me well before the surgeries and the ambulance rides, the long nights of worry and the demons that come to chase away my sleep too often.

I do think that sometimes my friends don’t understand the depth of these changes in my life. Maybe I don’t talk about them enough. I’m not generally one to complain about the way things are, or at least I don’t think I am. Life is a gift and I’m thankful for it.

Since Hermione came to revolutionize my life, I only find that I have room for people who treat me with kindness, openness and respect. My life is rich and full, and plenty of drama comes from reality. I expect friends to talk to me about what their issues are openly and with trust as that is how I approach the people in my life. I fight enough with things, and I will not fight with my friends.

So when special needs parents say that they have lost friendships over their child, I can see that it may be the case for me as well. However for me it’s not because of the burden that she is but because of the tremendous gifts that she has given to me. I am more than what I was before she came.

For there is a friend for his own occasion, and he will not abide in the day of thy trouble. And there is a friend that turneth to enmity; and there is a friend that will disclose hatred and strife and reproaches. And there is a friend a companion at the table, and he will not abide in the day of distress.

Ecclesiasticus 6:8-10

Categories: Special Needs Parenting, Stories from My Life | Leave a comment

Turning off the TV.

This year we as a family decided to turn the TV off for Lent – forty days without the tube. With the new baby, the holidays, and all of the other stressors we’ve had, there had been lots of Netflix and video gaming in the Robinson household. So this was going to be hard, but doing it as a family is the key.

For Christians, Lent is a time of reflection on the sacrifices of Christ. It’s the forty days before Easter, starting with Ash Wednesday. We try in small ways to make some sacrifices ourselves in an effort to bring ourselves closer to God. It’s a wonderful time of growth and expansion, probably because it is a challenge. The idea is to give up things that are not necessarily harmful to us but rather luxuries that we would otherwise feel entitled to. So you wouldn’t necessarily use this time to give up smoking, but of course there’s never a bad time to give that up.

I thought I’d share our saga here with you, and let you know how we’ve spent the time. I guess one good thing is that it’s afforded me the time to take up blogging again 🙂

Day 1 – Ash Wednesday. Church! Dinner at the table with everyone. The house felt so quiet. Shockingly quiet. It’s amazing how without that background noise (which is of course what TV tends to be) there is just this emptiness. A bit of a jolt to adjust to.

Day 2 – Thursday. This day was a bit more challenging. The boys however discovered a love of bath time. They took four baths between the two of them – two together and one each alone. We were admittedly shocked at this development.

Day 3 – I was home from my internship. We read lots of books today and the boys spent a ton of time outside. Also got their room a bit clean! Went to see hubby’s grandfather and spent a great portion of the afternoon there.

Day 4 – Saturday. The hubby was gone with his dad all morning, so the boys and I enjoyed a super quiet day.  We listened to a lot of NPR. The boys played with their Skylanders – these little statue toy things that go with the Wii. The boys played out their game WITHOUT their game. It was super fun to see. They played out this elaborate story with their figures. For a while Virgil was even the bad guy. Day 5 – Sunday. Church again in the morning. I am so proud of my boys, who are hanging with it so well. We’ve talked a lot about God and sacrifice, how it can make you a better person. However, Yeats says that next year he’s giving up homeschool for Lent.

Day 6 – Monday. Took Hermione to PT and her first speech. Hubby did karate with the boys. An easy day!
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Day 7 – Tuesday. LeapPad has taken over our house! Mom got the boys the old kind of LeapPad, the kind with actual books that you touch with a pen, and they had not really taken much notice of it for months. She hooked them up with like twenty books. Now it’s all they want to do. LeapPad started at 4:30am. Hermione went to doc for what turned out to be infected ear pits (see previous post)

Day 8 – Wednesday. We decided to have a picnic on the deck. In the cold. With blankets.

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Day 9 – Thursday. Karate with the family. This is perhaps my favorite picture ever!

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Day 10 – Friday. The boys rediscovered their Cars racetrack. An afternoon of racing ensues.

More to come as the days roll on toward Easter!

Categories: Motivation, Spirituality, Stories from My Life | Leave a comment

Sick night

Hermione has infected ear pits 😦 They’re these little dimples right at the tops of her ears which are actually more than just tiny spots but rather cavernous sinuses. We always knew infection was possible and so we caught it super early as we watch such bizarre things closely.

Thought I’d share our nighttime comfy tray!

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Happy midnight everyone!

Creamed corn (currently our favorite food), fruit medley, ibuprofen for the fever, antibiotics for infection and clonazepam to chase away seizures.

Categories: Childcare, Stories from My Life | Leave a comment

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